Based in Spencer, WV, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals diagnosed with Prader-Willi syndrome, their families, and caregivers through essential support services. Our Family Support team is committed to providing accurate information and a range of resources right from the moment of diagnosis. We offer parent mentoring, nutritional education, meal planning assistance, and behavior management strategies to enhance quality of life. Additionally, we guide families through the complex processes of applying for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To connect with our support network, we encourage families to use our online chapter locator or reach out via email to join our Facebook Support Groups, fostering a sense of community and care during challenging times.