Located in Summersville, WV, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is committed to offering accurate information and comprehensive assistance from the moment of diagnosis. We provide a wide range of services including parent mentoring, nutritional education and meal planning, behavior management support, and guidance with Medicaid applications and appeals, as well as assistance with insurance coverage and accessing Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI). To connect with our local resources or join one of our supportive Facebook groups, families can utilize our online chapter locator or reach out to us via email for help. We're here to stand beside you on this journey, ensuring that no family faces this challenge alone.