Located in Terra Alta, WV, the Prader-Willi Syndrome Association (PWSA) is dedicated to supporting individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Our compassionate Family Support team is committed to providing accurate information and essential resources right from the moment of diagnosis. We offer a wide range of services, including parent mentoring, nutritional education and meal planning, behavior management support, and assistance with the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We encourage families to reach out through our online chapter locator or connect with us via email for access to our supportive Facebook groups, ensuring no one has to navigate this journey alone.