Located in Williamson, WV, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support and resources for individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team is a reliable partner, offering accurate information and compassionate assistance right from the point of diagnosis. We empower families through a variety of services, including parent mentoring, nutritional education and meal planning, and behavior management support. Additionally, we assist families in navigating the complex application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For more details on how to receive support, families can connect with their local PWSA chapter or join our Facebook Support Groups for a sense of community and shared experience.