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Idiopathic

User Profile: NatureNurtures
NatureNurtures July 29th, 2022

My husband has spinal cord degeneration and the doctors have not been able to find a cause/treatment to help him. He’s had a dozen mri’s, 2 spinal taps. . .

(and I am recovering from a fractured patella)

So much anxiety for us!

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User Profile: bluelotus99
bluelotus99 July 30th, 2022

Hello NatureNurture!

I'm sorry that you guys are going through a difficult phase. It's completely understandable that you feel anxiety in this situation. I hope things get as best as they can.

You can always message me and tell me in detail about what's happening. Venting helps.

1 reply
User Profile: NatureNurtures
NatureNurtures OP July 30th, 2022

You are so kind, thank you !!

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User Profile: jigsaw3638
jigsaw3638 July 30th, 2022

@NatureNurtures

You're so strong... Believe me you're going to be okay... Bad times do come to an end.

1 reply
User Profile: NatureNurtures
NatureNurtures OP July 30th, 2022

Hi jigsaw!


I really appreciate your words of encouragement.

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User Profile: AMloco
AMloco July 30th, 2022

@NatureNurtures

Im going thru something for a long time too. Did he find help? I had lumbar punctures that showed oligoclonal banding and high spinal fluid protein all after an infection. Had high wbc count and lymphocytes. Have you found answers. Im praying for him. Please respond back. Im looking for answers too.

2 replies
User Profile: NatureNurtures
NatureNurtures OP July 30th, 2022

My husband’s thoracic cord has thinned a little, lp’s are normal.

Supposed to see an endocrinologist regarding hyperostosis ….


Have any meds/treatments been helpful for you?

1 reply
User Profile: AMloco
AMloco July 30th, 2022


@NatureNurtures

They did nothing

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User Profile: EmbStitcher33
EmbStitcher33 July 30th, 2022

Sending positive vibes and hugs. I hope you find the help you need ❤️😊

1 reply
User Profile: NatureNurtures
NatureNurtures OP July 31st, 2022

Thank you much Emb!!

Neurologists, radiologists, endocrinologist, urologist …

maybe we need a paleontologist, lol.



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