Living with disabilities
Hey everyone ive been living with disabilities since I was 2.5 years old its been very challenging bc ive had to go through life with people not supporting me or saying that I was having seizures "just for attention" making it seem like I could control them, I cant and what's worse is having people say "I know how to handle a person with epilepsy" but then when I do actually have one they just sit there dumb founded. I also have been diagnosed with other disabilities as well. I dont have anyone I can turn to about how these disabilities make me feel but here I am
@Darklily29
🥺
I'm sorry you are going through so much.
And people have the audacity to suggest you are making it up.
You are more than your disability.
And have feelings and dreams too.
It's nice to have you here with us and thanks for opening up 💕💜
@Darklily29
Hello, how are you doing today?
You can talk to me about your disabilities if you want too. I don't have epilepsy and i don't know what it's like but it sounds difficult to deal with. But I have other chronic illness though, so i can understand the anxiety and depression that comes with it
I just want to say that you are amazingly and inspiringly strong. It's hard when people don't believe you, but I do. I believe that your pain is real, but i also believe that you are strong enough to overcome it all. The proof is, after battling epilepsy for many years, you are still here, still trying your best to survive, and that is more than enough. Your strength inspires me and i hope we can both live our lives to the fullest inspite of having chronic illnesses.
Wishing you the best 💙
Thank you I really appreciate that i have epilepsy, anemia, anxiety depression, astma,allergies and what im sure is pots but the doctors refuse to believe me, I also have hypoglycemia and chronic migraines it has definitely not been easy some days are harder then others. And here lately its been a real struggle im living in an unsafe apartment and have been trying to get help getting an rv but bc im not popular on social media and im just a person nobody will help my community wont help and I dont know what else to do ive been putting myself out there and it just feels like no matter what I do its always a no
@Darklily29
I'm sorry to hear that. Unfortunately it is true that the more popular you are, the more support that you'll get from people. But please never think that you're a nobody. You inspire me with your strength and i hope one day i can be as strong as you too! I actually also struggle with some of the chronic illnesses that you have, like anemia and suspected pots. My head feels dizzy and light headed all the time but unfortunately i don't know how to ask my doctor to test me for pots...they usually just tell me to go to an ENT doctor or to a neurologist.
I actually want to ask my doctor to test me for pots but i'm scared that they'll think i'm arrogant or something. I worry that they'll say something like "You're only a patient while i'm a doctor. You don't know what you're talking about."
It's true that i know almost nothing about the medical field, but i know my body best and i want to get tested for pots. Do you have any advice maybe? Should i ask them to test me for pots?
So coming from a doctor i follow on *** he said the best way to test for pots is to get a auto blood pressure cuff put it on your arm while laying down and the stand up fast and test it again if it goes above 160 its not pots its hypoglycemia if it stays at 160 or drops lower you have pots. And you are incredibly strong to
@Darklily29
That sounds so painful and frustrating. Having your seizures and disabilities dismissed or misunderstood must feel incredibly isolating. It’s really brave of you to share your experience here, and you deserve support and understanding for what you’re going through.