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ME / CFS is a Real Disability! Questions? Ask Here!

User Profile: JoyfulUnicorn
JoyfulUnicorn July 21st, 2020

What is ME and CFS?

Myalgic Encephalomyelitis (ME) is also known as Chronic Fatigue Syndrome. This is a long-term illness with a wide range of symptoms. The most common symptom is extreme tiredness.

My Story - Me and ME

I am Joy. I am a listener here on 7cups and i am not without my own struggles, i have many health issues mental and physical and i live with ME/CFS. There are good days - there are pretty damn bad days where i am completely bed ridden. I have chosen this time to tell you of my health because I believe the awareness of this illness is important.

You Can Ask Anything!

If anyone has any questions please ask away - I can't speak for anyone else's experience but i can explain mine. Whether you are a sufferer yourself, or you have a family member or friend that you are unsure how to support or just want to know a lil more. Please ask - No question is wrong - No judgement here!

Below are a few bullet points about ME and CFS…

- There is not a specific test for CFS/ME, so it's diagnosed based on your symptoms and by ruling out other conditions that could be causing your symptoms.

- Treatment for CFS/ME aims to relieve the symptoms.Most people with CFS get better over time, although some people do not make a full recovery. It's also likely there will be periods when your symptoms get better or worse.

- Living with CFS/ME can be difficult. Extreme tiredness and other physical symptoms can make it hard to carry out everyday activities. You may have to make some major lifestyle changes.

- CFS/ME can also affect your mental and emotional health, and have a negative effect on your self-esteem.

Below is a summary image of a few of many symptoms people experience with ME/CFS…


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https://www.meaction.net/ - Action for M.E. tackles ignorance, injustice and neglect for people whose lives have been stolen by M.E.

Remember.... Please ask anything you wish - No question is wrong - No judgement here!

Stay Strong and Keep Fighting!

- Joy <3

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User Profile: LDmr819
LDmr819 April 10th, 2023

I have long covid that has caused IDF , idiopathic fibrosis or lung disease, ME and Lupus amongst others. Just be kind to yourself

User Profile: sooty41
sooty41 April 10th, 2023

@JoyfulUnicorn

Thank you for highlighting ME and how it actually feels to live with it. I commend your bravery and candidness. I have suffered ME and fibromyalgia for 30 years now and it is not an easy journey by any means. Excuse the irony.....i wanted to write more, much more, but i'm tired and sore and need to lie down.

I wish you all the best and hope for many good days ahead of you xx