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Wednesday November 9 - Disability community check-in thread

User Profile: DonaldK
DonaldK November 10th, 2016

Wednesday November 9 - Disability community check-in thread

Thoughts?

Me: Sorry took so long getting this posted.

2
User Profile: huggerofcats
huggerofcats November 10th, 2016

It's been an okay day for me. I've been zoned out and depressed for most of the day, and the brain fog has been making all of that worse. My pain hasn't been horrible today. I've started to get back into my physical therapy routine, so my muscles are still recovering from that as well. My doctors have been coming up with good solutions over the past few months, too. Just increased the dose of my muscle relaxer, and surprisingly, it seems to be doing something, but I'm pretty sure I'm not supposed to be on it all the time. I was basically told to try it out for now. I also have a new hormone doctor who is looking into the whole likely estrogen dominance issue along with other hormone problems. And my geneticist thinks getting a PICC line (and possibly a permanent port) for fluids might help with a lot of my symptoms. She doesn't think I can hydrate orally, even with high levels of salt. To be honest, that's kind of exciting because she has an idea that might work. She found a problem and might be able to fix it. Too bad I'll probably have to wait a month before starting that.

Oh, and I recnetly started a new autoimmune medication!! Still on a pretty low dose, though.

Anyway, those are some things that are on my mind. Hope everyone's having an okay day so far.

1 reply
User Profile: DonaldK
DonaldK OP November 10th, 2016

@huggerofcats I am sorry that you're having so many struggles, but I am glad that they are finding solutions. I empathize with the waiting game, it is not fun to wait, especially when you needed it fixed sooner than later. Thank you for posting :-).

Donald K

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