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Anyone know anything about Huntington's?

User Profile: Akawashi
Akawashi May 15th, 2017

I have it, suffering symptoms and failing relationship... looking for advice on how to deal with my symptoms and sort my head out and fix my relationship...

she's the love of my life. We e been together 4 years and we're falling apart.

im looking for free, impartial, confidential, anonymous advice from someone who can listen, talk and be a friend in my time of need,...

4
User Profile: Hayley44
Hayley44 May 16th, 2017

@Akawashi Hi! I am really sorry to hear that you have been suffering with your disease. If youre having trouble coping with your condition, consider joining a support group. It can help to meet other people with Huntingtons disease and share your concerns. If you need help performing daily tasks or getting around, contact the health and social services agencies in your area. They might be able to set up daytime care. Ask your doctor for advice on the type of care you might begin to need as your condition progresses. I understand that your having relationship stress due to this, maybe you both need to sit down and talk about things, ask your partner what she is thinking and feeling as well as telling her your thoughts and feelings. You love eachother you will work things out no matter what, love is stronger than you think. Please don't give up hope, you can have a beautiful life and I wish you all the best :)

3 replies
User Profile: Akawashi
Akawashi OP May 16th, 2017

@Hayley44 hi, thankyou for your kind words, they reach deep. I have had to see the results of hd with my mother, it's not easy to be around other people like me... I truely hope that love is strong enough... I sort want to lose her, 4 years is a lot to give up on, and I don't want to fail her. I'm trying everything to fix this, I just hope it's not too late :(

2 replies
User Profile: Hayley44
Hayley44 May 16th, 2017

@Akawashi it's never too late, don't worry ok. I really hope everything works out for the best for you :)

1 reply
User Profile: Akawashi
Akawashi OP May 16th, 2017

@Hayley44

ye me too :(

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