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Disabling headaches

User Profile: discreetSky5633
discreetSky5633 April 26th, 2022

When i was a baby i was diagnosed with hydrocephalus and coming with it permanent migraines, memory loss and i feel like I'm slowly losing my ability to be a teenager because i am always in pain and no amount of medication helps... Just looking for people who experience similar things so i can feel like I'm less alone

2
User Profile: wonderfulRainbow817
wonderfulRainbow817 April 30th, 2022

Hey @discreetSky5633. You are not alone. I don't have hydrocephalus as a baby so I can't fully understand what you feel but I also get migraines. I pass out with mine and am in pain every day. It makes every day living very hard. I try to find a positive in each day though.

User Profile: goldenThinker5257
goldenThinker5257 May 25th, 2022

What a frustrating experience. I'm sorry you're going through this. I recently had a worse migraine and have been trying to find out the cause. I consulted many doctors and went through many tests, and finally, they confirmed that I was suffering from vestibular migraine. They prescribed painkillers and many other medicines. But it's only temporary relief. So I went to see a physiotherapist (vestibular), and he changed my life. It really worked for me. It's worth trying to see if you suffer from the worst migraine, and it may just help to have it adjusted. Good luck, and I hope you get some relief soon. Take care.