Hard of hearing and going blind
reliableTiger5590
December 16th, 2022
I'm 31 have sticklers syndrome causes my hearing loss and loosing my eyesight very slowly but now progressing as I get older have 3 kids and I don't have a lot of confidence in myself afraid I won't be able to take care of my kids
fruityPond7887
December 19th, 2022
@reliableTiger5590 Hi! I hope you are doing well! I am really sorry to hear that you are struggling with Stickler's Syndrome. I can understand how you are feeling. Is there anything the doctors can do to slow the loss of your vision and hearing? Also, do you have any support with your children? I can understand how scary it must be. We are here for you and I want to give you this resource on support for those struggling with Stickler's: https://stickler.org/ I hope this helps! We are here for you!