Vision Loss
Hello everyone. Just wondering if there's anyone else out there struggling with vision loss/low vision/any other vision problems. I've lost a lot of my central vision recently (I'm now legally blind) and I'm really struggling with it. The organization I've been referred to for support hasn't got back to me and I'm really losing hope. Thought maybe I could connect with people online...
Id love to talk to anyone, but thought I'd also start a thread specifically for this topic since I couldn't find one about it already.
cheers! Xo Cupcake
I am at risk of vision loss actually. My father was diagnosed with RP and was legally blind in 2007.
I have spent years helping him find things and get around in crowded places and I know how hard it is on a person. If you ever need to talk to someone, I understand what it is like.
Thanks for the support. It's nice to have someone to talk to who understands it. And gets it from a different perspective too. Do you ever get frustrated or burnt out trying to help your dad? I've become pretty dependent on my family members since it's only been a few months and I'm not yet used to doing things differently. But I feel guilty for asking them to do so much for me, which ends up making me feel more depressed and like a huge bother :(
Honestly it's not a bother at all! I help my dad with things like finding things, telling him when the ground is uneven or there's a step, telling him who people are when he can't see it himself and things like that. It's jut become part of our life. You need to ask your family for help though when you feel you need it! They will understand I promise!
My father is also a retired electrician who didn't want to give up work so he still builds and I help with that
Sorry for the late reply. I never got a notification about this thread :/
But yeah you're right. I mean, I know my family understands, I just struggle with the anxiety of asking for help (not vision related) to begin with. Then add to the fact that lately I'm needing help with pretty much everything. But yeah ultimately I know that my family loves me and doesn't mind. It's just something to get used to I guess.
It's ok don't worry :)
and yes, asking for help is always hard. I don't ask my family for help even when I need it so I understand that. My father was diagnosed about 9 years ago and he still won't ask for help. I still remember when I was 7 and he had to stop working. He refused to ask for help but he eventually saw that a little help does pay off.
It definitely does pay off. Also, asking for help when you need it is better than having people assume you need help with absolutely everything. I've had people just grab me and start pulling me or doing things for me that I'm perfectly capable of doing myself, but they figure I Wont ask so they'll just do it for me, lol. The grabbing my arm suddenly thing can be scary sometimes too :p
I see people to that to dad all the time! When we're out in public he can't really get around so I stay near him and tell him if I will take his hand or something so it doesn't scare him. It's just little things your family and friends will pick up along the way :)
uh hi guys. I'm kinda scared about my life right now, as I have RP and for me, its really difficult as not many people understand what I'mgoing through.]
i understand that what you're going through is probably quite worrying for you, so if you like, you can talk to me :>
Hey. I
Hello, I have struggled with ocular toxoplasmosis for many years now (aquired from my pets' feces), which has the long term risk for blindness. After they come to maturity I can see the worms floating in my eyes, weird...I am happy they did not go to the brain or lungs for now they stay in the eyes.
I lived my life independantly so I always prepared for the worst and not having to have help. I taught myself to be ambidextrous by will so now I can do with my left hand whatever I can do with my right hand. I taught mysekf to live in the dark and I can find my way in the hause or outside with very much ease abd i showered in darkness when the power was off. When I was paralised I devised ways to take care of myself, even tying shoes.I used to train dogs for disabilities and therapy. So rarely in the most extreme cases I would need help from anyone. I never feel or will feel guilty, I do my best to do on my own and the rest I shall be grateful for the help I get if need be.
Don't fall down just because you went blind, it is the opportunity to find out what you are capable on your own that others are not. I taught myself to perceive sounds and air and much much more to the point that I know tgat a person is behind me. It is just a matter of perception enhancement, if you keep relying on others for 80% of the time, you miss on your potential and dignity.
Be well andtake care and live your life, hugs!
