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I have Borderline Personality Disorder. AMA!

User Profile: DawnMarie
DawnMarie June 28th, 2014

I know I've gotten more than a few questions from people in my inbox and I've studied BPD for ages, so here goes!laugh

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User Profile: Laura
Laura June 28th, 2014

To keep it simple - can you describe what BPD means to you, in your own words?

Also, what is one thing you wishthe world knew about BPD that they don't?

User Profile: DawnMarie
DawnMarie OP June 29th, 2014

(This might be a little intense, but here goes...)

BPD, in my own words, means living in a constant state of having no emotional temperature gauge. Your internal thermostat bounces from below freezing to pure fire with no notches in between. And then there you are trying to do everything you can to find some way to try to get away from either of the extremes. It's terrifying, and no matter what you do, you can't escape being ricocheted between them and end up almost destroying yourself in the process.

And then imagine being born into a body but feelingas though your soul never finished loading before they pulled you out in threw you into the world. You're left with this gaping void in yourself that just aches, just like a hunger pain, and it follows you around like a shadow everywhere you go. You try to fill it with things, people, ideas, etc. But it's like a black hole that just swallows everything you try to stuff into it. (A common phrase used to describe BPD is"Anything to fill the void.") and it's hauntingly true.

Everyone else in the world is a portrait of themselves. They know who they are. They don't changetoomuch over time. But not you. You're like a mirror. You just reflect everything around you and that's what you depend on for your own self-image. Some factor of your environment gets removed or changed and suddenly you have no idea who you are anymore.

And what I wish the world knew about BPD? We're not all these manipulative, evil, hateful, vengeful, unstable people that the stigma makes us out to be. Anyone would react desperately when they were in pain. And a lot of us have this fear we'll never be loved, or anyone who is "fooled" somehow into loving us will just toss us out and leave us abandoned and alone. Why is that fear of abandonment an actual critera for the diagnosis? Because so many of us just want to belovedand feelsafeandprotected.And it's terrifying when you're just trying to escape from something that lives inside you.

(Thanks for the great questions. smiley)

1 reply
User Profile: Laura
Laura July 8th, 2014

Thanks for sharing that Dawn and being so open about your experience.

Does the hole you describe ever feel satisfied?

Do you ever feelemotional balance?

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User Profile: Randi
Randi June 29th, 2014

Do you think having BPD has helped you in any ways? (As in, I know it's called a "disorder" but does it allow you to see things differently than others or have different skills than they do?)

Also, what things have best helped you cope with this, and what coping mechanisms have been unhelpful?

Also, I love you, and thank you for sharing.

1 reply
User Profile: DawnMarie
DawnMarie OP July 13th, 2014

Do you think having BPD has helped you in any ways?

I think it's helped me as an artist/writer. (This might also answer the next question.) I ALWAYS seem to have some emotion tugging at me looking to be expressed. It's also made me incredibly curious about psychology and therapy methods and I feel like it's inspired me in that way, as well. Without it, I think I'd be lacking in those two absolutely huge passions I have in life.

Sure, having emotions constantly running at full volume is kinda chaotic and totally hectic at times, but I feel like it's also given me a greater sense of self-awareness because I really want to UNDERSTAND what's going on. And, on that note, being a highly emotional person helps me kinda get "in touch" with the universe. It's not always bad emotions, either. I have this huge capacity, I feel, for pleasant ones, as well.

Also BIGGEST THING, is that it has given me a lot of understanding and compassion for those who are also struggling with BPD. I want to finish my degree in psychology and use my writing skills to put more information out there for those with it who want help, because I was there, and most of the literature is on how to handle a loved one with BPD. There's so much negative stigma in overall society, as well as the clinical realm, placed on those with BPD. I feel it's almost a calling of mine to help others with BPD and that's why I list it on my profile, and I really enjoy interacting with those with it and just letting them know that someone isn't judging and someone else really understands their emotions and fears and such.

Also, what things have best helped you cope with this, and what coping mechanisms have been unhelpful?

I'm not sure if extensive research really counts as a coping mechanism, but trying to understand what all of this is so I can get a handle on it has certainly helped. Aside from that, as I mentioned earlier, writing, music, and art are BIG coping mechanisms for me. However, part of the BPD criteria focuses on self-destructive, addictive, and impulsive tendencies as a quick "way out". I won't lie about that. I've had my struggles with those things, as well.

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User Profile: youcantellme
youcantellme July 2nd, 2014

(you did this AMA on my birthday) How do you feel when you meet other females who have BPD? And how do you deal with their venting when I'm sure a lot of it is triggering content?

1 reply
User Profile: DawnMarie
DawnMarie OP July 13th, 2014

This site has actually been my first real significant interaction with others with BPD. Some of the people I interact with are other listeners, and some come to me as members, all wanting to talk about it because I mention it in my profile. I actually REALLY enjoy talking to others about the stuff that comes along with BPD. I love to hear it from someone else's perspective, but also providing that sense of non-judgment, understanding, and empathy that it's often hard to find as someone with BPD because you're so used to everyone just getting frustrated with you or just completely misinterpreting things. Like I said above, they write books for family members on how to "deal with" someone with BPD. It's not an easy task. I feel like I understand this and can get a feel for the emotions someone is experiencing and be a little more patient, understanding, and kind towards people with BPD because of that because I've actuallybeen there. (And I really don't want that to sound like I think I know everything, either. Not at all. BPD is just really complex and confusing to those who haven't really lived in that brain. 99.9% of the time, I'm told "wow, I feel like someone understands me for once in my life." and THAT makes everything I suffered through and worked through on my own feel like it was worth it. It's SUCH a powerful feeling.)

And triggered? Not so much. Frustrated sometimes? Yes. I don't really find myself triggered by much at all because I've learned this weird sort of empathetic detachment that I felt like I needed so I didn't get way too emotionally wrapped up in other people (because of the super mega emotional capacity thing). More than anything, if someone starts really opening up about BPD-related feelings or issues, I sit back and think "I've been in very similar shoes before. I know what that feels like." Why is it frustrating sometimes? The unique issues with personal boundaries and abandonment that BPD can present. That, and just seeing someone at such a hopeless point that they just want to give up and they begin hating themselves for having "so many problems". Again, not a lot of resources out there for people with BPD who WANT help. That's what I want to change. And the stigma everywhere. But even in that frustration, I'm still patient and kind. Because that's all I ever wanted from someone when I was at my worst.

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User Profile: Phantom
Phantom July 7th, 2014

How has this affected your romantic relationships?

User Profile: Goldfish11
Goldfish11 July 7th, 2014

I have BPD too :(

have you heard of DBT? DBT helps a lot I think...

User Profile: MissOh
MissOh July 8th, 2014

I have BPD also.. i always thought i was the rare person to have it and even though i wish none of you had it it makes me feel less alone hearing I'm not the only one.. thank you for sharing how BPD feels to you.

User Profile: Noasu
Noasu July 9th, 2014

Is BPD a social construct and/or mental health challenge?

Have you felt oppressed byyour diagnosis?

How can someone best support someone with BDP?

Have you experience mistreat from mental health professionals due to your label?

How does BDP effect you in your day to day life?

How do you feel about the current state surroundingthe Stigma of mentalhealth?

Does your areaservices people with BDP well?

Is there a large BDP support network?

What'syour opinion on the DSMVsummary and evaluation on BDP? Accurate or does it need more revision?

What treatment options are there for people living with BDP?