The Cornelia de Lange Syndrome (CdLS) Foundation, located in Avon, CT, is dedicated to supporting individuals and families affected by this rare genetic disorder. With a mission to optimize the potential of over 3,000 individuals diagnosed with CdLS, the Foundation offers comprehensive support services, including educational resources, advocacy, and community events such as weekend retreats. As a principal resource for professionals in medicine and therapy, the Foundation plays a critical role in addressing challenges such as healthcare access and social connection for those impacted by CdLS. By actively reaching out to those undiagnosed or unaware of available services, the CdLS Foundation fosters a sense of community and support. Explore the range of services and resources the Foundation provides to empower families on their unique journeys.