Located in Hilo, Hawaii, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering families affected by Prader-Willi syndrome through essential support and resources. Our Family Support team is here to provide accurate information and compassionate guidance from the moment of diagnosis, ensuring that families never feel alone in their journey. We offer a variety of services including parent mentoring, nutritional education, tailored meal planning, and behavior management assistance. Additionally, we help families navigate the complexities of applying for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For immediate support, families can connect with their local PWSA chapter through our online locator or join our Facebook Support Groups for ongoing community engagement.