Based in Kamuela, HI, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team is a reliable resource for accurate information and comprehensive assistance during the challenging times following a loved one’s diagnosis. We offer a wide range of services including parent mentoring, nutritional education, meal planning, and behavior management support. Additionally, we guide families through the often complex processes of applying for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For support, connect with your local PWSA chapter through our online chapter locator or reach out to us to join one of our Facebook Support Groups.