Based in Kaumakani, HI, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals with Prader-Willi syndrome and their families through compassionate and comprehensive support. Our Family Support team offers vital resources tailored specifically to families, including accurate information during the diagnosis journey, parent mentoring, nutritional education and meal planning, and behavior management strategies. We also assist with navigating the complexities of application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For assistance, families can connect with their local PWSA chapter through the online chapter locator or become part of our supportive community by joining one of our Facebook Support Groups.