Family Support
Prader-Willi Syndrome Association (PWSA) Kekaha, HI
About Family Support
Based in Kekaha, HI, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. At PWSA, we understand the challenges families face upon receiving a diagnosis, which is why our Family Support team offers accurate information and a range of resources to ensure no one navigates this journey alone. We provide comprehensive support, including parent mentoring, nutritional education, meal planning, behavior management strategies, and assistance with applications and appeals for Medicaid, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For more information and to access our support services, local families are encouraged to connect through our chapter locator or via email to join one of our dedicated Facebook Support Groups.
At a glance
Overview
Location
Kekaha, HI
Website
Family Support
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Free emotional support
Free, anonymous, and available right now - no appointment, no cost.
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