Located in Kula, HI, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals diagnosed with Prader-Willi syndrome along with their families and caregivers. Our compassionate Family Support team offers vital resources and comprehensive assistance that begins at the moment of diagnosis. We provide essential services such as accurate information, parent-to-parent mentoring, nutritional education and meal planning, as well as behavior management support. Additionally, we guide families through the often complex application and appeal processes for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For support, interested families can reach out through our local chapter via our online locator or connect with us through our Facebook Support Groups, ensuring that no one faces this journey alone.