Based in Paauilo, HI, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential assistance to individuals living with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team stands ready to offer accurate information and comprehensive resources tailored to the unique challenges faced at the time of diagnosis. We focus on providing vital services such as nutritional education and meal planning, behavior management techniques, and parent mentoring while also guiding families through the complexities of application and appeals processes for Medicaid, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To access our support services, families can connect through the local PWSA chapter via our online chapter locator or reach out via email to join one of our supportive Facebook groups.