Based in Volcano, HI, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing vital support to individuals with Prader-Willi syndrome and their families. Our Family Support team is here to offer accurate information and comprehensive resources during the crucial period following a diagnosis. We facilitate a range of services, including parent mentoring, nutritional education and meal planning, behavior management assistance, and guidance through the application and appeal processes for Medicaid, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families seeking support can reach out through our local chapter via our online chapter locator or email us to join one of our supportive Facebook groups, ensuring that no one has to navigate this journey alone.