Based in Wailuku, HI, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team offers essential resources and compassionate guidance during the challenging moments following a diagnosis. We provide accurate information and comprehensive assistance, including parent mentoring, nutritional education, meal planning, and behavior management strategies. Additionally, we help families navigate the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). If you need support, we invite you to connect with your local PWSA chapter through our online chapter locator or reach out via email to join one of our Facebook Support Groups.