Located in Ankeny, Iowa, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals diagnosed with Prader-Willi syndrome and offering essential support to their families and caregivers. At PWSA, we understand the challenges that arise at the time of diagnosis, which is why our Family Support team is committed to providing accurate information and comprehensive resources. Our services include parent mentoring, nutritional education and meal planning, behavior management support, and assistance with navigating Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI) application processes. Families can easily connect with our local chapter through the online chapter locator or reach out via email to join one of our supportive Facebook groups.