Located in Coralville, IA, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals living with Prader-Willi syndrome, along with their families and caregivers. At PWSA, we understand the challenges faced at the time of diagnosis, and our Family Support team is here to offer reliable information and comprehensive assistance tailored to your needs. Our program includes valuable resources such as parent mentoring, nutritional education and meal planning, behavior management support, and guidance through the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We invite families to connect with us through the local PWSA chapter via our online chapter locator or to reach out via email to join one of our supportive Facebook groups, ensuring that no one has to navigate this journey alone.