Based in Grimes, Iowa, the Prader-Willi Syndrome Association (PWSA) is dedicated to uplifting individuals diagnosed with Prader-Willi syndrome and their families through a compassionate and comprehensive support network. Our Family Support team serves as a reliable resource, offering accurate information and guidance right at the moment of diagnosis. We understand the unique challenges families face, which is why we provide essential services including parent mentoring, nutritional education and meal planning, behavior management assistance, and support for navigating application and appeal processes related to Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We encourage families to connect with their local PWSA chapter through our online chapter locator or via email to join one of our supportive Facebook groups, ensuring they never feel alone on this journey.