Located in Johnston, IA, the Prader-Willi Syndrome Association (PWSA) offers vital support to individuals living with Prader-Willi syndrome and their families. Our dedicated Family Support team provides essential resources at the crucial moment of diagnosis, ensuring families have access to accurate information and comprehensive support. PWSA extends a variety of services including parent mentoring, nutritional education, meal planning, and behavior management strategies. We also assist families in navigating the complexities of applying for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For support, families can connect with their local PWSA chapter through our online chapter locator or join one of our Facebook Support Groups by emailing us directly. We are here to help every step of the way.