The Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals diagnosed with Prader-Willi syndrome and their families in Shenandoah, IA, by offering vital resources and compassionate support. Our Family Support team provides up-to-date information and comprehensive assistance at the critical moment of diagnosis, ensuring families are never alone on this journey. We offer parent mentoring, nutritional education and meal planning, behavior management strategies, and guidance through the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To connect with us and access our supportive community, please reach out through the local PWSA chapter or join our Facebook Support Groups for ongoing connection and resources.