Based in Waukon, IA, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome and their families. The Family Support team is committed to offering accurate information and comprehensive resources right at the moment of diagnosis. Our program includes vital services such as parent mentoring, nutritional education, meal planning, behavior management assistance, and guidance through the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families seeking support can easily connect with their local PWSA chapter using the online chapter locator or via email to join one of our Facebook Support Groups.