Based in Declo, ID, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals with Prader-Willi syndrome and their families through comprehensive support and guidance. Our Family Support team provides essential resources at critical moments following a diagnosis, including accurate information, parent mentoring, nutritional education, meal planning assistance, and behavior management strategies. We also offer support for navigating the complexities of applications and appeals for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families can easily connect with their local chapter through our online locator or reach out via email to join one of our supportive Facebook groups, ensuring that help is always within reach on this journey.