Based in Jerome, ID, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support and resources for individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. At a critical time following diagnosis, our Family Support team offers accurate information, emotional support, and practical assistance every step of the way. We provide valuable services including parent mentoring, nutritional education, meal planning, and behavior management support. Furthermore, we assist families with navigating application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To connect with our supportive community, families are encouraged to reach out to their local PWSA chapter through our online locator or email us to join one of our dedicated Facebook Support Groups.