Based in Shelley, ID, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential assistance to individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team is committed to offering reliable information and comprehensive resources during the crucial time of diagnosis. We provide a range of services including educational support for parents, nutritional guidance and meal planning, behavioral management strategies, and help navigating the complexities of Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI) applications and appeals. To access these valuable resources, families can connect with their local PWSA chapter through our online chapter locator or reach out via email to join our supportive Facebook groups.