Based in Erlanger, KY, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome and their families. Understanding the complexities associated with this diagnosis, our Family Support team offers vital resources including accurate information, parent mentoring, nutritional education, and meal planning to enhance the quality of life for those affected. We also focus on behavior management support and assist families in navigating important applications and appeals for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We invite families to connect with us through our local chapters for personalized assistance or join one of our Facebook Support Groups to find community and solidarity during this journey.