Based in Hebron, KY, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals with Prader-Willi syndrome, their families, and care providers. Our Family Support team offers reliable information and comprehensive resources right from the moment of diagnosis. We emphasize parent mentoring, nutritional education, and meal planning tailored to meet unique needs, alongside behavior management support. Additionally, we assist families in navigating the complex application and appeal processes for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To connect with our supportive community, reach out via our local PWSA chapter through our online chapter locator, or join one of our active Facebook Support Groups by emailing us for more information.