Located in Irvine, KY, the Prader-Willi Syndrome Association (PWSA) is dedicated to offering vital assistance to individuals with Prader-Willi syndrome and their families. Our Family Support team provides essential resources that families can rely on during the challenging moments following a diagnosis. We offer a wide range of services including accurate information, parent mentoring, nutritional education, meal planning, and behavior management guidance. Additionally, we assist families with navigating the often complex processes surrounding Medicaid applications, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). If you are seeking support, please reach out to your local PWSA chapter through our online chapter locator or connect with us via email to join one of our supportive Facebook groups.