Located in Latonia, KY, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals diagnosed with Prader-Willi syndrome and their families through a range of vital support services. Our Family Support team offers reliable information and compassionate assistance right at the moment of diagnosis, ensuring that families never feel alone in their journey. We provide parent mentoring, nutritional education, and meal planning tailored to the unique needs associated with Prader-Willi syndrome. Additionally, we guide families through behavior management and assist with navigating the application and appeal processes for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To access support, families can reach out to their local PWSA chapter through our online locator, or email us to join a Facebook Support Group that fosters community and connection.