Based in Morgantown, KY, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals living with Prader-Willi syndrome, along with their families and care providers. The Family Support team is committed to offering reliable information and holistic assistance right from the moment of diagnosis, ensuring families have the resources they need. Our comprehensive program includes parent mentoring, nutritional education and meal planning, behavior management support, and guidance navigating the complexities of Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For those seeking assistance, we encourage reaching out through our online chapter locator or emailing us to join our supportive Facebook groups.