Based in Newport, KY, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing vital support and resources for individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is committed to offering accurate information and comprehensive assistance during the challenging time of diagnosis. We provide a range of essential services, including parent mentoring, nutritional education and meal planning, behavior management support, and guidance through the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We invite families to connect with us and explore our valuable services, as we work together to empower and support those affected by Prader-Willi syndrome in our community.