Located in Nicholasville, KY, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals diagnosed with Prader-Willi syndrome and their families through vital family support services. Our compassionate Family Support team is here to provide accurate information and comprehensive assistance at the crucial moments following a diagnosis. We offer a range of services, including personalized parent mentoring, nutritional education, meal planning, behavior management support, and guidance with applications and appeals for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). If you’re seeking support, we encourage you to connect with your local PWSA chapter through our online locator or via email to join one of our supportive Facebook groups.