Located in Paris, KY, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Through our Family Support program, we offer vital resources tailored to meet the immediate needs of families facing the challenges of this diagnosis. Our services include accurate information dissemination, personalized parent mentoring, nutritional education and meal planning guidance, behavior management support, and assistance with the complex processes of applying for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We invite you to connect with our local PWSA chapter using the online chapter locator or reach out via email to join one of our supportive Facebook groups, as we are here to ensure you never have to navigate this journey alone.