Based in Pikeville, KY, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing vital support for individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team is committed to offering accurate, practical information and a wide range of resources right from the moment of diagnosis. We focus on empowering families through parent mentoring, nutritional education, meal planning, and behavior management strategies. Additionally, we assist families in navigating the complexities of applying for Medicaid, insurance benefits, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To connect with our community and access these essential services, please reach out to your local PWSA chapter via our online chapter locator or inquire about joining our supportive Facebook groups.