Based in Princeton, KY, the Prader-Willi Syndrome Association (PWSA) is dedicated to offering essential support and resources to individuals affected by Prader-Willi syndrome, along with their families and care providers. Our Family Support team is committed to providing accurate information and comprehensive assistance from the moment of diagnosis, empowering families with vital resources such as parent mentoring, nutritional education, and tailored meal planning. We also offer behavior management guidance and help navigate the often complex processes of applying for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For those seeking support, please reach out through our online chapter locator or connect with us via email to join one of our supportive Facebook groups.