Located in Union, KY, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team offers reliable information and comprehensive assistance right at the time of diagnosis to guide families through their journey. We provide vital services such as parent mentoring, nutritional education and meal planning, behavior management support, and help navigating application and appeals processes for important programs like Medicaid, SSI, and SSDI. We invite families to connect with us through our local chapter or via email to access support resources and join our Facebook Support Groups, ensuring you have the community and guidance you need every step of the way.