Located in Eliot, ME, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing vital support for individuals diagnosed with Prader-Willi syndrome, their families, and caregivers. Our Family Support team is committed to ensuring families receive accurate information and comprehensive assistance from the moment of diagnosis. We offer a range of services including personalized information, parent mentoring, nutritional education, and meal planning guidance. Additionally, we provide behavior management support and help with navigating the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For support, families can easily connect with their local PWSA chapter using the online chapter locator or reach out via email to join one of our supportive Facebook groups.