Located in Freeport, ME, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is committed to offering reliable information and comprehensive guidance following a diagnosis, ensuring families have the resources they need in critical times. We offer a range of services including parent mentoring, nutritional education and meal planning, behavior management support, and assistance with Medicaid applications, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families can connect with our local PWSA chapter via our online locator or reach out by email to join our supportive Facebook groups, ensuring no one faces this journey alone.