Located in Gray, Maine, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is here to offer accurate information and compassionate guidance at every step following a diagnosis. We specialize in various forms of assistance, including parent mentoring, nutritional education, meal planning, behavior management, and support with Medicaid applications and appeals, as well as help with insurance coverage and Supplemental Security Income (SSI) or Social Security Disability Insurance (SSDI). Families seeking support can easily connect with their local PWSA chapter through our online locator or by reaching out via email to join one of our Facebook Support Groups. We are committed to empowering families with the resources they need to navigate the challenges of Prader-Willi syndrome.