Located in Lincoln, ME, the Prader-Willi Syndrome Association (PWSA) is dedicated to offering vital support to individuals with Prader-Willi syndrome, their families, and care providers. Our Family Support team is committed to providing essential information and compassionate guidance at every step of your journey, especially at the time of diagnosis. We offer resources such as parent mentoring, nutritional education, meal planning, and behavior management support. Additionally, we assist families in navigating application and appeals processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families seeking support can connect with us through our local chapter or join one of our Facebook Support Groups to engage with others who share similar experiences.