Located in Standish, ME, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome, as well as their families and care providers. Our Family Support team is committed to delivering accurate information and comprehensive assistance from the moment of diagnosis, ensuring that families are not alone in their journey. We offer vital resources including parent mentoring, nutritional education and meal planning, behavior management support, and guidance through the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For access to our support services or to join our community, families can connect with their local PWSA chapter via our online chapter locator or email us to become a part of one of our Facebook Support Groups.