Located in Savage, MN, the Prader-Willi Syndrome Association (PWSA) is dedicated to supporting individuals affected by Prader-Willi syndrome, along with their families and care providers. Understanding the challenges that come at the time of diagnosis, PWSA’s Family Support team offers essential resources such as accurate information, parent mentoring, and nutritional education to help families navigate this journey. Our program includes behavior management support and guidance on applying for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We invite families to reach out through our online chapter locator or connect via email to join our supportive Facebook groups, ensuring that no one feels alone in this experience.