Based in Portland, ND, the Prader-Willi Syndrome Association (PWSA) is dedicated to supporting individuals with Prader-Willi syndrome and their families through every step of their journey. Our Family Support team is a vital resource, offering accurate information and compassionate assistance from the moment a diagnosis is received. We provide critical services including informational resources, parent mentoring, nutritional education and meal planning, and behavior management support. Additionally, we guide families through the often complex processes of applying for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We invite you to connect with your local PWSA chapter using our chapter locator or reach out via email to join one of our Facebook Support Groups for added community connection and guidance.