Based in Rugby, ND, the Prader-Willi Syndrome Association (PWSA) is dedicated to supporting individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team is a vital resource, offering accurate information and comprehensive assistance from the moment of diagnosis. We provide a range of services, including personalized parent mentoring, nutritional education, meal planning, and behavior management support. Additionally, we help families navigate the complexities of Medicaid applications, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To access our resources or connect with support groups, we encourage you to reach out via our chapter locator or email us directly for further assistance and community engagement.